Mon 15 Dec 2008
When Good News is Bad News
Posted by Emily under Eating well, Illness | Tags: chronic illness, dairy, diet, IBS, irritable bowel syndrome, prescription medicine, soy[2] Comments
As I’ve written about before, I suffer from a pretty severe case of Irritable Bowel Syndrome, which has negatively affected every day of my life for the past six years. When I first developed symptoms, my gastroenterologist wanted to do a sigmoidoscopy just to be sure it wasn’t something more serious. We scheduled the appointment but I chickened out and canceled it; the pre-procedure cleanse sounded pretty terrible, as did the fact that I would be awake during it and feel lots of bloating and discomfort. Like I needed more of that! My doc never bugged me to go through with it since I had such a classic case of IBS.
Fast forward several years, and my symptoms aren’t any better, and the functional disorder is still very debilitating and stressful for me. I found out that my gastroenterologist’s office was doing a clinical trial for IBS and I decided to give it a shot. If none of the prescription meds or alternative therapies I’d tried in all these years had worked, why not try something new? I went through all the screening tests and was disqualified, which disappointed me, but they notified me that the results of one of the tests concerned them. My doc said it was time to look inside stat, and I needed a full colonoscopy.
I was scheduled for last Thursday. The cleansing the night before was horrible; I won’t go into detail, but I had a pretty wretched night. Fortunately, because it’s a pretty intense procedure, I was given some amazing drugs and was asleep during it. And I got to spend the rest of the day resting and asking my poor boyfriend the same questions over and over again until the amnesiac part of the medicine finally wore off. As strange as this may sound, I was hoping for the doctor to find something bad. No, I didn’t want to have ulcerative colitis or another disease more serious than IBS, but I wanted an answer. IBS is so ambiguous; there’s no real cause and there’s no real cure. It’s an umbrella term for “sorry, your digestve system is totally out of whack, but we don’t really know why.” I was hoping to find out that I did have something curable, or something to at least explain why my symptoms are so severe.
When I finally gained enough consciousness, I asked my boyfriend what the doctor said. Normal. Nothing unusual was found. It was like a punch in the gut. I’m NORMAL? Really? That can’t be. Why am I so debilitated by pain, bloating, stomach aches, constant upset stomachs, urgency, and other unfavorable symptoms that make my life hell? I actually wanted bad news. I should have been thrilled that I didn’t have polyps or ulcers or something else dangerous, but I wasn’t.
I am still trying to come to grips with the fact that my insides look normal, but my digestive system does not function correctly. But I am trying to make this an impetus for change since something has to give. An IBS sufferer, Heather Van Vorous, used to have severe symptoms until she customized a diet for herself over time and used it in combination with several natural supplements. Because it helped her so much, she has written a book called Eating for IBS, a hugely informative website, and even has her own brand of supplements so she can control exaclty what goes in them. I’ve had her book for years but never paid much attention to it, but I looked through it again last night and realized I really need to give her ideas a shot. She discusses trigger foods that people with IBS don’t tolerate well and should cut out when possible. She explains the vital difference betwen soluble and insoluble fibers and how much of a diference they make to IBS sufferers. Her book offers hundreds of recipes of delicious foods that are made with IBS-friendly alternatives, such as soy products instead of dairy, and fat-free crackers instead of regular, and other things that seem very doable, so I am going to give it a shot. I know processed foods are full of crap so I am going to make a concerted effort to cut back on them and begin home making foods in her book. I don’t have to be deprived; I just have to eat smart.
I’ve learned not to get my hopes up anymore, because nothing has ever really helped. Some of my medicines make me feel a little better, but often make me groggy and/or just mask my symptoms and then make them worse in a rebound effect. But I’m hoping that a life style change such as a diet overhaul might help. Last year, I went on a yeast-free and sugar-free diet, and it did help my symptoms a bit (and I dropped a few pounds, which is always nice) but it was unrealistic for the long-term because I was so deprived. Heather’s diet requires some drastic adjustments, but most are very doable.
Anyway, I just feel conflicted. It’s great that I got good news from the doctor, but it doesn’t solve anything. I’m hoping that this diet might help a little. I’m trying to remain positive that things won’t be this bad forever.
Do you suffer from a chronic illness? Have you ever had a similar reaction when looking for answers?




